As a patient or parent, you have the right to choose your healthcare provider. Below are links to resources with up-to-date information, not to recommend but rather to direct parents or providers to information that may be useful. We appreciate the work done by diverse healthcare providers for pediatric and amputee populations, which benefit all our communities. Your questions and feedback are welcome. Thank you.
Pediatric resources NM
- NM Medicaid – General information.
- New MexiKids and New MexiTeens – no cost or low cost health care coverage programs for children and young adults under 19 years of age.
- NM Early and Periodic Screening, Diagnostic and Treatment Program (EPSDT) – In New Mexico every child from birth to age 21 and covered by the Medicaid State Plan program is eligible for EPSDT services. EPSDT services are required by the federal government to provide medically necessary services including preventive check-ups, diagnostic tests and direct services such as physical, occupational, speech/language therapy, private duty nursing, wheelchairs, nebulizers, case management, vision/dental care, diapers, and more. For more information about EPSDT services, contact New Mexico’s Human Services Department Medical Assistance Division (888-997-2583).
- NM Medically Fragile Case Management Program (MFCMP) – NM program affiliated with UNM Health Sciences Center School of Medicine, Center for Development and Disability. Medicaid providers of this program in Las Cruces include Mountain Shadows Home Care and Las Cruces Comprehensive Rehab.
Pediatric resources TX
- Texas Health Steps EPSDT – EPSDT service is Medicaid’s comprehensive preventive child health service (medical, dental, and case management) for individuals from birth through 20 years of age, and Comprehensive Care Program (CCP).
- The Parent Companion: First Five Years – A guide for Texas parents and caregivers of children with diagnosed or suspected disabilities from birth through 5 years of age
- Children’s Disabilities Information Coalition – El Paso TX non-profit organization to assist parents of children with disabilities with information and resources.
Pediatric cranial deformity (additional information under Pediatrics)
- Army Emergency Relief (AER) at Fort Bliss – AER provides financial assistance to active duty soldiers, retired and family members during times of valid emergency need. Cranial helmets may be covered when a helmet is prescribed, but is not approved for reimbursement by TRICARE. Soldiers can apply for assistance through the AER section on their installation. Individuals who are not near an Army installation can go to a Service Aid Society (all four Aid Societies work together through reciprocal agreements). Individuals who are more than 50 miles away from any military base (ie, recruiter, ROTC instructor) can work through the Red Cross call center at 1-877-272-7337. Army families can also apply via their website (www.aerhq.org). Messages sent via site link “Tell Us Your Story” will go directly for review. AER understands the critical nature of timely treatment and says approval for assistance moves quickly. For other services, any military family who has a child in need of a helmet should contact the Military Aid Society for their particular military branch.
Facebook page with support and information for military families: Cranial Helmets: Re-Shaping Our Children’s Future By Using Our Heads.
- CappsKids (Craniosynostosis and Positional Plagiocephaly Support) – Parents providing info for parents.
- Torticollis Kids – Parents helping parents get information regarding torticollis and its appropriate treatment.
- Plagiocephaly Info – Dr. Kevin M. Kelly provides in-depth information on plagiocephaly. Positional Plagiocephaly Parents Support – FAQs for parents.
- Craniosynostosis.net – Drs. Jimenez and Barone, University Health System, San Antonio TX, explain surgical options for craniosynostosis.
- Tummy Time Tools – Activities to help you position, carry, hold and play with your baby.
- Facebook: Plagiocephaly Awareness and Prevention; Baby Flat Head Syndrome Support
- Association of Children’s Prosthetic and Orthotic Clinics ACPOC – International association of clinics providing prosthetic-orthotic care for children with limb loss or orthopedic disabilities.
- CHAMP Child Amputee Program, War Amps National Amputee Center (Canada)
- I-CAN (International Child Amputee Network) – Organization dedicated to promoting education, support, information, and empowerment to traumatic and congenital limb different children and their families.
- Department of Veterans Affairs (VA) – Rehabilitation and Prosthetic Services provides medically prescribed prosthetic and sensory aids to eligible Veterans including artificial limbs, hearing aids, communication aids, eyeglasses, orthopedic braces and shoes, wheelchairs, crutches and canes. You must be enrolled in or qualify for VA health care program, see “Basic Medical Benefits Package for Veterans” for program requirements. For more information, contact the prosthetic representative at the nearest VA medical center or outpatient clinic (http://www.va.gov/directory/) or call 1-877-222-8387. eBenefits is a source for information on Department of Veterans Affairs benefits and services.
- E-nabling The Future – A network of passionate volunteers using 3D printing to give the World a “Helping Hand.”
- Pain and Phantom Limbs – Published by The War Amps National Amputee Center (Canada), with permission to provide this resource on our website, and a reminder that US veterans may not apply for assistance in Canada.
- Amputee Coalition of America – Resources, peer support, outreach, and education, with most information available in English and Spanish, and National Limb Loss Information Center.
- Active Amp – The on-line connection for amputees with active lifestyles.
- Limbs For Life Foundation – Organization that provides a financial bridge between low-income amputees and the prosthetic care they need.
- Mobility Saves Lives and Money – Research using Medicare data shows that patients who are approved for orthotic or prosthetic devices have increased mobility, which saves healthcare dollars. Patients who are mobile have better quality of life, greater independence, lower healthcare expenditures, and fewer hospital admissions.
- Barr Foundation Amputee Assistance Fund – established 1995 to provide assistance for amputees with no other financial resource by providing reimbursement to the prosthetists for materials. email: Foundation@t-barr.com, phone 561-391-7601.
- Social Media – Less Is More (the Limbblogger on living with limb difference); AmputeeMommy
- Mastectomy – Breast Cancer Support Group of Southern New Mexico meets monthly Memorial Medical Center.
- Muscular Dystrophy – El Paso MDA covers West Texas and Southern New Mexico including Grant County.
Parent Project Muscular Dystrophy – Also see their Facebook Page.
- Americans With Disability ADA. Equal Employment Opportunity EEO. Disability.Gov
- Native American Disability Law Center – a private nonprofit organization that advocates for the legal rights of Native Americans with disabilities.
- Disability Rights Texas – federally designated legal protection and advocacy agency (P&A) for people with disabilities in Texas.
- Texas Department of Assistive and Rehabilitative Services
- Disability Rights New Mexico (DRNM) (formerly New Mexico Protection and Advocacy) – A congressionally mandated service run as a non governmental non profit organization, with advocates and attorneys who represent the interests of persons with disabilities.
- State of New Mexico Governor’s Commission on Disability – Disability advisor to Governor and Legislature to ensure that policies are enacted and followed to benefit New Mexicans with disabilities.
- New Mexico Department of Health – New Mexico health resources and information. Client/Patient Bill of Rights – from the Department of Health in New Mexico (in Spanish and English)
Las Cruces NM
- The Ability Center for Independent Living (TACIL) 575-526-5016. Behind Albertsons on Idaho. Information, referral, ADA compliance, food bank, fitness group, paid representative program. Collaborate with San Juan Center for Independence, Farmington, NM.
- DIAL-a-RIDE – Seniors and persons with certain disabilities may qualify for RoadRUNNER Transit curb-to-curb public transportation service. 575-541-2777.
- City of Las Cruces – EEO/ADA, on the city website, click on Departments–Human Resources. 575-528-3227.
- Dona Ana County ADA/EEO Office 575-647-7210.
- La Clinica de Familia (LCDF) Early Head Start Program – Center and home based services for children and parents. In Las Cruces, Myrna’s Children’s Village (575-532-0515) and Bonita Plaza (575-532-2002).
El Paso TX
Allied Health Teams Members
- New Mexico Chapter of the American Occupational Therapy Association (NMOTA)
- New Mexico Chapter of the American Physical Therapy Association
- National Association of Social Workers New Mexico – Website Help Starts Here.
- New Mexico Speech-Language Hearing Association (NMSHA) – State professional body of speech-language pathologists and audiologists
- Kaiser Commission on Medicaid and the Uninsured – The Kaiser Family Foundation website provides in-depth information on key health policy issues.
- InfantSEE®, a public health program, managed by Optometry Cares® – the AOA Foundation, is designed to ensure that eye and vision care becomes an essential part of infant wellness care to improve a child’s quality of life. Under this program, participating optometrists provide a comprehensive infant eye assessment between 6 and 12 months of age as a no-cost public service.
Accessible Playgrounds – An accessible playground means it is as easy as possible for everyone to play, regardless of their abilities or disabilities.
- Disability.gov’s Guide to Assistive & Accessible Technology – Assistive technology (AT) resources and links to help people with disabilities live independently and participate in the classroom, workplace and in their communities.